Everyday giving to support lives of children with Sanfilippo Syndrome image

Everyday giving to support lives of children with Sanfilippo Syndrome

We are raising funds to help the quality of life of our "older" children who will never see a cure. We have a few studies/trials going on now, and are slated to open two new clinical trials in the near future.

$46,629 raised

$500,000 goal

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Giving quality of life to our dying children!

  1. Two clinical trials are in the works with Team Sanfilippo that are 100% funded by families. Please join us in giving children a fighting chance! We will also continue funding research that will help the quality of life of all of our children.